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Aurinia awards $ 250,000 in grants to support patient navigation programs

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Five patient organizations will receive funding to implement plans aimed at reducing health disparities, connecting people living with systemic lupus erythematosus (SLE) and lupus nephritis (LN) with the necessary resources for health management.

ROCKVILLE, Maryland – Aurinia Pharmaceuticals Inc. (NASDAQ: AUPH / TSX: AUP) (the Company) today announced the recipients of five $ 50,000 grants to support the implementation of patient navigation programs targeting disadvantaged populations at increased risk of developing SLE and LN. Each patient-centered non-profit organization will receive funding to support their proposed one-year pilot programs with the goal of helping people living with these conditions navigate the complexities of disease diagnosis and management, supporting a better adherence to medical appointments and treatments, and provide personalized resources and education.

“The RFP process was competitive and we were delighted to receive so many thoughtful and creative submissions for this first Aurinia initiative,” said Christine Lindsay, Vice President of Advocacy and Professional Relations. “All five recipients received grants based on their demonstrated ability to collaborate with key lupus centers, rheumatologists and nephrologists, their ability to measure program outcomes, and ultimately provide individualized support to underserved populations.”


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Navigation programs will be launched in the following cities:

  • Atlanta Georgia
    Lupus Foundation of America Georgia Chapter in collaboration with Grady Lupus Clinic
  • Brooklyn, New York
    The Brooklyn Health Sciences Center Foundation in collaboration with SUNY Downstate Health Sciences University
  • Cleveland Ohio
    Lupus Foundation of America Ohio Chapter in collaboration with the Ohio Department of Health
  • Indianapolis, Indiana
    Lupus Foundation of America Indiana Chapter in collaboration with Eskenazi
    Indiana Hospital, Lupus Clinic and University Hospital
  • Philadelphia, Pennsylvania
    Lupus Foundation of America Tri-State Chapter in collaboration with Temple University Hospital Lupus Program

“The need for a patient navigation program at our institution, and many like ours, is enormous. Racial and ethnic characteristics have long been recognized as influencing the outcome of SLE patients. Black (African American and Afro-Caribbean) and Hispanic patients with SLE have more severe disease than white patients, with higher mortality and a more rapid accumulation of irreversible damage, ”says Ellen M. Ginzler MD, MPH, Vice President of Research, Department Chief of Medicine, Division of Rheumatology, SUNY Downstate Health Sciences University. “We are pleased and honored to work with The Health Science Center of Brooklyn Foundations to implement a student-led navigation program and work to reduce health disparities, emphasize early diagnosis, and provide compassionate, high-quality care to immigrants, at risk, and neglected people. ”

“Twenty years ago, very few talked about lupus. There was little awareness and understanding of the signs and symptoms and very little investment in research. We have made great progress, but we must do more as we have lost too many premature babies of all ages and we cannot rest, ”says Sam Lim, MD, MPH, Professor of Medicine and Epidemiology, Emory University, Chief of Rheumatology – Grady Health System and Director of the Grady Lupus Clinic. “We are looking forward to working with the Lupus Foundation of America, Georgia chapter, to implement a patient navigation program that will mitigate barriers to health equity by improving patient adherence to treatment, provider-provider communication. patient, the physical and mental health of the patient and, most importantly, the results. ”

Aurinia-funded patient navigation programs launch July 1 and grant recipients will meet regularly to share lessons learned, best practices, and community needs that can be addressed through navigation services. during the grant period of 1 year.


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About Systemic Lupus Erythematosus (SLE) and Lupus Nephritis (LN)

LN is a severe manifestation of SLE, a complex and chronic autoimmune disease. About one in three of these individuals with SLE will develop LN. If not well controlled, LN can lead to permanent and irreversible tissue damage within the kidney, resulting in kidney failure. Black and Asian people with SLE are four times more likely to develop LN, and people of Hispanic descent are about twice as likely to develop the disease compared to Caucasians. Black and Hispanic people with SLE also tend to develop LN earlier and have worse outcomes compared to Caucasians.

About Aurinia

Aurinia Pharmaceuticals, Inc. is a fully integrated biopharmaceutical company focused on offering therapies to treat specific patient populations affected by serious diseases with a high unmet medical need. The Company’s head office is in Victoria, British Columbia, its commercial center in the United States is in Rockville, Maryland, and the Company focuses its development efforts globally.

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Glenn Schulman, Pharmacist, MPH
Investor relations and corporate communications, Aurinia
[email protected]

Dana Lynch
Corporate communications, Aurinia
[email protected]




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